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Updates
Erin is currently on Phenobarbital to help control her original seizure disorder. Since finishing the ACTH, and finding it to be ineffective, her doctor has placed her on Keppra to be given twice daily. The Kanes have seen an improvement in her Myoclonic jerking and she has more control of her muscles. They do no know if the Infantile Spasms have been eradicated and will not know until the July EEG.
"What we have in common makes us
human. How we differ makes us individuals."
by: Carol Ann Tomlinson
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The photo of her with the black band around her head is a picture of her with her “tilt switch.” The switch is hooked up to her light box and if she holds her head up, the light box turns on.
If she drops her head, it shuts off. She smiles and gets excited when it turns on so she is learning cause and effect and working on her neck muscle strength. These devices were made possible by Early Intervention and the donations of Erin’s Angels.
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Erin playing with her Mylar filled O’Ball on her light box.
This is used to build vision strength. The light attracts her eyes to the object and the Mylar is reflective, enabling her to see it.
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Erin standing up straight and tall. That is the hard working “fighting” Erin who is giving it her all and trying to overcome the muscle spasticity and tightness.
She works daily to overcome her challenges and just soars at times. In this picture, she is soaring. |
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Erin Kane is in great need for our help.
